The Radiologist’s Report

How long has it been? I went to see Dr Nesbit in Hove in May, and here we are nearly in December and I now have the Radiologist’s report on the six scans I have been able to get together.  

The last scan was done in August and the Canterbury Radiologist’s report and release of the scan didn’t happen until the end of October. And we then had another four weeks of Dr Nesbitt instructing his radiologist Dr Panos Koubalis.  You may recall, to qualify for any interest/treatment as a primary progressive patient, lesions have to be ‘active’.   I received the results last weekend; Saturday morning. As I fully expected, there do not appear to be enough changes, or should I say lesions/enhancements to be put forward for stem cell treatment. I still find it hard to understand why my condition has deteriorated so drastically and swiftly when apparently there are no new lesions. Here is the reason why: ‘The high level of lesional burden in the cervical spine may account for the significant disability.’

I could publish the whole report so you can read for yourself what the Radiologist’s professional opinion is, but I am not sure I should do that.  From reading the scan repeatedly I would argue that there is activity, if ‘atrophy’ is taken as a verb, or whether ‘the high level of lesional burden’ is viewed as activity.  Perhaps what is more relevant is for me to hear from Dr Nesbitt as to his opinion on the report and I will be interested to see if he offers me anything. Anything at all. 

To date, since my diagnosis in December 2017, I have received nothing, so why should he be any different?

I may update this when I hear from him. Ive sent him an email asking for a response……….I rather get the feeling he does ‘paperwork’ at the end of the week.