Update 2

My apologies for the unimaginative heading but I really am just trying to get my thoughts and facts correct and in the right order because tomorrow I have a rather important consultation with a haematologist who may be able to advise or prescribe or help with stem cell treatment.

But before I relate to you what happens with my online consultation with him there are a few developments from last week that you may find interesting. You will recall that my GP seems to be on something of a mission and is being extremely diligent not only looking back at my notes but putting pieces of the jigsaw together to come up with a different picture, maybe.

Two things happened at the same time one between a friend and me having a conversation about pain relief, and the second is my GP picking up for my blood test that I appear to be deficient in vitamin B. At her request I am now taking vitamin B12 and B6 and I think she is going to run some more blood tests to see what the levels are but she is suggesting that I have a course of vitamin B injections over six days and perhaps she thinks this will help the infection and maybe the pain?

The conversation I was having with the friend was about the fact I had noted and she had noted also through our conversations that when I had been on an antibiotic called Nitrofurantoin, The snakes and honey badger were knocked to the ground and for a long time I was actually pain-free. At Christmas I had had a sort of flu virus thing and at the same time managed to go down with cystitis. I rang the surgery and the doctor on duty gave me a three day course of Nitrofurantoin and I remember lying in bed with no appetite and feeling lousy and thinking well at least I haven’t got the goddamn pains. So that was three days at the very end of 2019.

About two weeks ago when the GP rang me and expressed concern that she thought I had an infection she put me on another dose of the same antibiotic which I will now call “NFT”, the same thing happened. When she rang me with the results of the blood test and told me to take the vitamin B and expressed her thoughts on giving me a course of vitamin B injections, I told her about the possible coincidence of the dreadful pains I have disappearing when I take these antibiotics: a fact she was extremely interested in.

So that is where we are. I hope I have included everything that has happened over the past week. And you may be able to visualise the parts of this puzzle which need to be put in some sort of logical order or better still slotted into place.

To summarise; it appears I have deficiencies in my blood which hopefully will be corrected by vitamin B injections and pills and we need to find out if there is any relation between the reduction in pain and taking NFT. Tomorrow I have a consultation with Dr Kazmi, the haematologist, and I will report on that consultation next.