Not sure

All is going quite well on the pain relief front in that I’ve succeded in reducing the dose which has apparently proved that the Gabapentin is the culprit.  So I’m back on the supplements and now on the lowest dose I’ve been on for over a year.  That’s the good news.   But that doesn’t mean that I’m pain free.  Far from it and I had a particularly bad attack at the end of the week which lasted over the weekend.

The reason why I came up with different creatures to help describe the pain was to help me differentiate between them and also to help try and visualise what is going on in my body so when I use the yoga breathing techniques I can target different muscles, nerve paths etc.  Which was working effectively, along with the CBD oils.  But what is going on now is too fierce and ferocious and disabling for me to try and put a name or face to them.  And they start up at completely different times of day.  They’re far more intense and also compromise my mobility directly.  My right arm and hand have taken a particular bashing over the weekend.  Holding a fork or knife in my right hand is really hard work and my legs were so weak I really questioned if I had to get up or go anywhere.   I will not use a wheelchair until absolutely necessary and all the time I jolly well can walk, I will.  But I can understand how it is easier to just give up and always be pushed about.  At least everyone knows where they are then and you can plan accordingly instead of letting people down or getting into situations where one is compromised.

Thankfully, this morning things seem to have settled down a bit which could be because of the enforced day of rest I had yesterday or it could all ramp up in the next few minutes.  But here I am back in the tank trying to make plans and a new week begins.   If I’m truthful the scariest bit over the weekend was the weakness I experienced.  I have a few methods to combat the pain;  hot bath, CBD oils,  resins and tinctures of varying types, the .1 of a gram three times a day of Gabapentin and yoga breathing.  I have two other prescription drugs in my cupboard which I will use…..when?  If I take the steroids I have to plan when I’m going to have an exacerbation as I have to take something else as well three days before I take the methylprednisalone.  Amatriptaline is another thing I’ve been given, but when I read the instructions that come in the box I am none the wiser as to how they work or when to take them.  I’ve asked the MS nurses and a doctor or two how to manage the dosing and had completely different and rather unhelpful advice from them all.  So I do still have some unused and different ammunition to play with.  Let’s see what the week brings.