Summer seems to have gone and here we are in Autumn and…..

FIRST FALL

Actually it wasn’t the first as there have been a couple of times in the garden when I’ve ended up marooned in the middle of the Michaelmas daisies and tangled up in the fence by the rhubarb.  They don’t count.  And have I had a fall, or did I fall over?  Hhmmm.  Neither;  I tripped over a box at the top of the cellar steps and then lost my balance.   I take it as a warning.

But there were a couple of things I wanted to say prior to tomorrow as that is the day I’m going to see another consultant.  This one consults from a BMI place in Blackheath and has been promoted by a neurologist who has a home locally but who practises in London.  He presumably didn’t think he could help me himself (although I gather has been responsible for some weighty charitable donations to KMSTC) but suggested Eli Silber who I am seeing tomorrow.  I am not expecting him to waive a magic wand or deny my diagnosis but I would like to know if he can point me in the right direction to get some DMT (Disease Modifying Therapy).  I asked Consultants Nos. 2 & 3 if there may be a possibility of the new drug Ocrelizumab and got a flat no (wrong sort of MS) ditto Stem Cell Treatment.  But news and views are always changing and I cannot believe there isn’t somebody out there who will help me.

By chance, there was a talk given at the Therapy Centre last week by a much liked Neurologist called HariKrishna (really).  The talk was about the new treatments and drugs, their pros and cons and also his personal view of their efficacy, costs, availability, funding, drug company involvement and a q and a session at the end.  So I feel better prepared to meet tomorrow’s consultant and will hopefully get somewhere.  If I am fortunate enough to be used in a trial that will then present me/us with the query as to whether I feel strong enough to do it.  One day at a time.  He may just present me with another hopeless diagnosis and who am I to argue with a brainy brain man?  But I have got a few more facts and figures today, than I had at the beginning of the year.