So this month was supposed to be my annual consultation with my Neurology Consultant. I telephoned the MS nurses’ telephone number at the hospital and actually got a reply instead of the usual ansaphone message for me to leave a message. The reason for my making contact with them was to ask if I should have a test done to check the creatinine levels which in the past has been a sign that my kidneys were objecting to the current pain killers. The receptionist fielding the calls said that yes, I should do that but we then learned (it was all happening at about the same time) that the hospital was so overworked they were not processing such tests. Hours later I learned that my appointment with Dr Hari (consultant) had been cancelled.
Well I wasn’t going to get much mileage from them anyway, so am I bothered? However tomorrow I will try them again as I do have various questions about things to come.
On a practical level, after four months of incredible efforts by our builders, we are back in our gorgeous, cosy, perfect home. In fact, we were back in when I wrote my last post, but I didn’t mention it then. Everything about it is working perfectly from basic layout and design to light levels both natural and artificial. There are still some things to finish outside such as the gates and of course there is the garden to plan and plant. I think that may not happen quite so quickly and efficiently as the house, partly because you can’t hurry Mother Nature but also because Pip begins his course of chemo tomorrow and although he is in good health in other respects he doesn’t have quite the same strength and energy he had before his diagnosis.
We learned about this before Christmas but the vital consultation with the oncologist didn’t happen until the beginning of January and until we really new what the game plan was, neither of us felt like broadcasting it. And here seems like as good a place as any to do it.
Am so glad you are in and all more than satisfactory! Now have to hope all goes well with Pips treatment a d you eventually get some positive help from NHS…..it must be soooooo frustrating not even getting tests done let alone consultations. I hope you get some good news on that front soon. All well here. Just dull Love to you both Margy
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