FINAL NOTE FOR 2020

It’s been a horrid year for everyone and I am only posting this note as a goodbye from my perspective of a strange year.

Yes, there are some incredibly strong and happy moments that have relieved the other negative and sad ones.  And it is upon those good ones we have to dwell.

To summarise – the investigations and tests that were initiated by our enthusiastic and thorough GP produced nothing conclusive or interesting enough to be taken further.  The care and interest our local surgery have taken over my case has been exemplary.  Next week I have a telephone appointment with the consultant neurologist who is looking after me.  I will report back if there is anything positive he may have to say.  On the basis that it will just be yet another negative experience I don’t expect I will have anything interesting or enlightening to report upon.   The best sort of response I can expect is that I may be up for another MRI, but as I have already explained, to get the new “wonderdrug” for PPMS I need to have new lesions, and even if I DO have these new lesions, its a bit bloody late now.

I’m tired.  I’m tired of trying to fight my corner.  I’m tired of being grateful to people in a profession which I thought was supposed to help me.  We hear about all the wonderful things the medics are doing, and I’m sure they are.  But not in my field.

Therefore, it’s probably best I say no more

I began this note over a week ago.  My appointment with the consultant never happened, and already we’re racing along on the roller coaster and starting on the first slope.  Here we go…..