Perhaps this is a good point to apologise to anyone in the medical profession who may be unhappy about what I have said about the experience I described in my last post. But, that is how it happened. I didn’t make it up. And re reading it, I think if somebody had told me what was going on then all would have been well and I probably wouldn’t have noticed the cold room or the badly presented doctor. But, it was the worst day since I was first diagnosed in December and the way that doctor broke the news was appalling. What the NHS are managing to do, in the somewhat straightened circumstances they are in, is fantastic. But what happened to me that day wasn’t really anything to do with their performance as such; sadly a representative of theirs let them down, badly. I know there are people out there who have had the very same tests, and found them well handled and no problem, and please post your comments to balance mine. But bad presentation by a representative of such a brilliant service didn’t help me in my current predicament. I would have 100 lumbar punctures instead of a morning of Nerve Conduction tests. I will come on to Lumbar Puncture Day shortly.
Claudia and Monty raised their heads or tightened their grip more frequently yesterday. I’m not going to give in and raise the dose back up to where it was at the beginning of the week, mainly because I don’t have any 100mg capsules with me right now. And as someone has calculated for me, does 3.5% (the amount by which I reduced the last dosage) really make a difference? Well, I suppose it did on the way up………
Mandi’s blog 